Autism Assessment Day Monkey

Autism Assessment Day

Another day another nervous appointment, Autism Assessment Day.

it’s the not knowing and waiting,

wanting it to be over that it does not matter what the results as there are things being put in place for January.
Autism Assessment Day
Speech and language therapy has given me things to do with Monkey to help her speech come along. 

They’re also putting an early intervention in place for a nursery,

it’s so hard to realise and there is a lot to process.

And I know I’m luckier than some people and I really feel for them, sending hugs. 

My heart hurts thinking about all what we have to overcome and go through,

I am thankful that we got the results earlier in Evie then poor KK she really has had a hard time in school. 

If I was to take a guess I would say Evie has

  1. ASD
  2. ADHD
  3. OCD 
  4. SPD

the Autism Spectrum Disorder is a very broad umbrella of symptoms.

here is a list of things I have found and ticked what KK and Evie have.

What to expect from an assessment day?

Be prepared for two hours of questions about eating, sleeping general behaviours. 

Play – does he/she interact with others 

What hurt most was there is a chart side A and B

you had to have all three listed on side A to continue to side B. 

Criteria for side B was one, Evie hit all four boxes

That’s when it hit that my worries were now a reality.

my world stopped moving, it was like the air was being sucked out of my body.

waiting for the words to trickle out

“I’m sorry to say your daughter has Autism” 

I wanted to cry for my girls, not only for how long a fight I had for KK 8 years!

To get two Autism Assessment Day diagnoses in the same year

I’m feeling better a day after just needed my mind to stop spinning and reeling from the news.

I know a lot will be put in place for Monkey now for January 2017,

There is a meeting next Thursday to look at nursery,

my worries are mainly because Evie is non-verbal, when I was there a little boy pushed her off the bike she was on.

Ok normal kids do this they show their dominance but monkey couldn’t say what had happened,

that she hurt her hands and that the boy did what he did. 

She is no way ready for potty training so we will be put into a pee and poo group to learn strategies for potty training. 

On top of all this, I have a cygnet group I need to go to so that I can understand KK more.

I honestly feel like my world is spinning.

35 Comments

  1. 18th December 2016 / 9:26 PM

    Thinking of you at this challenging time. I hope your meeting on Thursday goes well.

  2. 18th December 2016 / 9:26 PM

    This is a really useful post to share for families experiencing a similar thing, and brave of you to share your thoughts on it all. I hope things go okay for Evie and you all moving forward.

  3. 18th December 2016 / 9:32 PM

    Hopefully everything will be alright, which i’m sure it will be. All the best x

  4. 18th December 2016 / 10:26 PM

    Wow, this sounds intense. I have no experience of Autism so thank you for this brief insight into the assessment. Jo x

  5. 18th December 2016 / 11:31 PM

    Sending my best wishes – can’t be easy. Makes me admire my mum a bit more. I was diagnosed with dyspraxia when I was about 5. It doesn’t affect me too much now, but affects memory, coordination and cycling. It was hardest when at school. Kids couldn’t understand why I couldn’t grasp simple PE x

  6. 19th December 2016 / 12:16 AM

    Will be praying that everything goes well! Wish the very best! Happy Holidays! xoxo

  7. 19th December 2016 / 6:48 AM

    Sending you lots of virtual strength and support. This too shall pass, and you’ll all come out the other side stronger.

  8. 19th December 2016 / 10:34 AM

    Hope everything turns out ok for you and your little ones. It may be super overwhelming now, but I know a few people who are also on the autism spectrum and who cope very well. In fact, I didn’t even realise until they told me months after I first met them so don’t worry. It doesn’t mean they won’t have a beautiful, happy life!

  9. 19th December 2016 / 11:24 AM

    Such a brave post – hope putting down your feelings in words is helping you process them. It’s so true that knowing what you’re dealing with is a huge step towards moving forward.

  10. 19th December 2016 / 11:56 AM

    I hope that all goes well with the meeting and Evie and you have a good start in 2017

  11. 19th December 2016 / 1:50 PM

    I understand that there is a lot to learn, understand, and take on board. Of course you feel like you’re spinning. But please please be assured that your daughter’s are “normal”, they just need things done a different way. You will learn what works and what doesn’t. I have a very dear friend who has two sons with autisim. Once they got on the track that fittted their own individual needs (which was the tricky part finding out), they are both thriving. In all ways. School improved, social skills improved, and toilet habits worked out in the end. Don’t feel like you have to keep up with everyone else, it’s one step at a time. And as a Mum, you will put their needs before anything else, but remember one important thing; look after you too.

  12. 19th December 2016 / 3:27 PM

    I wish u lots of luck with ur family it must be so tough but at the same time relieved to get a diagnoisis. I don’t know much about autism myself but I do hope u get the help that you need.

  13. Laura H
    19th December 2016 / 4:45 PM

    Thanks for sharing your journey and sharing what the process is. This will no doubt be very helpful for many other parents like yourself. Wishing you all the best!

  14. 19th December 2016 / 4:47 PM

    I had to make one of my Postgraduate essays on Autism so I feel quite familiar with this topic and I understand your feelings. I hope that writing this article has been therapeutic for you.

    Mika

  15. 19th December 2016 / 6:12 PM

    I’m so sorry you are going through such a difficult time. I hope that all goes well once you have the results and things can be put into place that will help deal with their needs x

  16. 19th December 2016 / 7:16 PM

    I didn’t even know what assessment day may mean. I hope everything goes well for your little one.

  17. 19th December 2016 / 9:12 PM

    At least with a diagnoses you can start to move forward.

  18. 19th December 2016 / 9:17 PM

    I know a mum that will find this post really useful. Thanks for sharing and I hope all goes well at the meeting on Thursday x

    • clarissa
      Author
      19th December 2016 / 9:21 PM

      Thank you Melanie, if it helps others then I have done my job x

  19. 19th December 2016 / 9:18 PM

    I’m sorry to hear about everything you are going through but I’m sure it will all sort it out soon! 🙂

  20. Melissa major
    19th December 2016 / 9:45 PM

    Sorry to hear about this, sending you all lots of positive vibes

  21. 19th December 2016 / 10:22 PM

    Good luck hun, I understand it is a difficult process but I hope they get some answers soon. My sister ticks the boxes as well but they have not formally diagnosed her yet.

  22. 20th December 2016 / 9:21 AM

    I hope everything is okay but the point of the assessment days is to ensure your little one gets the care and attention she needs so I’m sure everything will work out x

  23. 20th December 2016 / 11:05 AM

    Aw hun I am sorry you are going through this right now and I hope you do get some answers x

  24. Kara
    20th December 2016 / 1:10 PM

    An interesting post to read I have a little boy and was completely unaware of the issues you mentioned – thanks for sharing
    K x

  25. 20th December 2016 / 6:03 PM

    Thinking of you at this challenging time. Hope your meeting goes well x

  26. 20th December 2016 / 8:02 PM

    We wish you all the best and at least you know now and can get the support you need moving forward. Hope 2017 is a good year for you and your family.

  27. Dena Jayne (@denajaynex)
    20th December 2016 / 8:54 PM

    Good luck with everything, hopefully 2017 will be a year of laughter & happiness xo

  28. Francesca
    20th December 2016 / 9:07 PM

    Sorry to hear that you’re going through a very trialling time! Wishing you all of the best and that things will get easier for you all!

  29. 20th December 2016 / 9:47 PM

    This is so informative, I have only ever had experience with adult Autism at school. I hope things go as well as they can xx

  30. 21st December 2016 / 12:24 AM

    I am hoping everything will be fine. I have no experience here but I am thinking of you.

  31. 21st December 2016 / 2:53 PM

    Thank you so much for sharing your story. Autism is a difficult condition to understand.

  32. 21st December 2016 / 4:53 PM

    I can not even imagine what it must be like, keep strong and thanks for sharing this I am sure it will be useful to other families to know they are not alone

  33. 21st December 2016 / 9:16 PM

    I hope your meeting goes the way you want it. I wish you and your little ones all the best for the coming months xx

  34. 21st December 2016 / 11:32 PM

    Hope your meeting goes well hun, will be keeping you in my thoughts xxx

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