Assessment Day Monkey

Another day another nervous appointment, it's the not knowing and waiting, wanting it to be over that it does not matter what the results as there are things being put in place for January.
Speech and language therapy have given me things to do with monkey to help her speech come along.
They're also putting early intervention in place for nursery, it's so hard to realise and there is a lot to process. And I know I'm luckier than some people and I really feel for them , sending hugs.
My heart hurts thinking about all what we have to over come and go through, I am thankful that we got the results earlier in Evie then poor KK she really has had a hard time in school.
If I was to take a guess I would say Evie has ASD, ADHD,OCD and SPD the Autism Spectrum Disorder is a very broad umbrella of symptoms, here is a list of things I have found and ticked what KK and Evie have.


What to expect for an assessment day?

Be prepared for two hours of questions
About eating,sleeping general behaviours.
Play - does he/she interact with others
What hurt was there is a chart side A and B you had to have all three listed on side A to continue to side B.
Criteria for side B was one, Evie hit all four boxes.
That's when it hit that my worries were now a reality, my world stopped moving it was like the air was being sucked out of my body waiting for the words to trickle out "I'm sorry to say your daughter has Autism"
I wanted to cry for my girls, not only for how long a fight I had for KK 8 years! I then get two diagnosis' in the same year.
I'm feeling better a day after just needed my mind to stop spinning and reeling from the news.
I know a lot will be put in place for Monkey now for January 2017, I have a meeting next Thursday to look at nursery, I'm worried mainly because Evie is non verbal, when I was there a little boy pushed her off the bike she was on.
Ok normal kids do this they show their dominance but monkey couldn't say what had happened, that she hurt her hands and that the boy did what he did.
She is no way ready for potty training so we will be put into a pee and poo group to learn strategies for potty training.
On top of all this I have a cygnet group I need to go to so that I can understand KK more,
I honestly feel like my world is spinning.

#Autiemumschatter – 1

Here is the opening series of ‘Autie mum chatter’ two friends with two children living on the Autistic Spectrum. Talking about things, getting it off our chest at the end of a tough day, crying and then have a laugh and the end.

Granted, yes it is hard work being an autistic child’s mum
It is not A walk in the park, and it can often seem trying,especially with judgemental people who are quick to give out their opinion on how to be A parent.

I bet they never had a child that acted up in public. and the thought of a child screaming,crying and making a scene would mortify them.
They would More often say, loud enough ‘if that was my child, it would have been given a slap’.

The eyes and shameful stares  Do you not think I know your watching and muttering your disapproval in my child that is unable to cope with her surroundings? the noise, smells and the crowds?
Have you ever felt claustrophobic? Anxiety attack? The feeling that you’re losing control?
Can you imagine as an adult how you could cope? Expressing your feelings in how scared you feel you’re going dizzy and ringing in your ears. The only way a child cope is to try and run away.

So next time you see a child and parent in distress don’t be so quick with your tongue,

offer a sympathetic smile, for a parent that smile could be the boost they need or ask if they need any help.

A little story for you,

I was out shopping and I could hear a child, of about 4 years old crying and screaming. the mother was doing so well in trying to stay calm. But I could see her feel powerless in the battle with her distressed child.

I approached with care, and made eye contact with the mum, and then she was crying,unable to contain her emotions.

I offered my hand to them both and asked if she could have a sweetie. I said how mummy loved her and how shopping to get bits for dinner needed to doing. The mum hugged me when the little girl skipped off holding her hand.

do you have a child with Autism or ASD, ADHD ? please know you are not alone.